My Health Update - October 2015Saturday, October 31, 2015
If you watched my recent YouTube video (you can watch it by clicking this link if you would like to) you will have seen me mention that I am taking a break from filming because my health has deteriorated and I am finding it too much mentally and physically to film so I am for the moment focusing on blogging.
For those of you who don't watch YouTube video's but read my blog and or are also new to my blog and have no idea of my medical condition I will give you a brief overview, I suffer with pelvic and intestinal adhesions which have resulted in my bowel, womb and bladder being fused together, this causes me amongst a lot of other problems chronic and severe pain, there is no cure for my condition and it is degenerative meaning it will become worse over time, I am in constant and severe debilitating pain and I have a lot of other problems which I'd like to keep private if that's ok? My medical condition has no cure and is life limiting, my organs are fused meaning they rub together constantly trying to force apart causing a lot of pain and also internal bleeding. I have a lot of side effects from my illness and take a lot of very strong medication, it is far more complex than that but I would be here all day, I also have PCOS, IBS, suffer from hemiplegic migraine and have asthma and also suffer with anxiety and depression, but in a nutshell that's me, my condition means I need a lot of help with every aspect of my daily life and cannot do the simplest of tasks which I find extremely hard to cope with and struggle a lot with. Obviously this is an extremely brief overview and I'd rather not put everything online for obvious reasons but this gives you a bit of an idea of my conditions, without me going very in depth, I hope I've managed to come across well and it's easy to understand.
Around 2 years ago I noticed I'd started to develop new symptoms and went to my GP and spoke to him about it, he said he thought I had either Fibromyalgia or Chronic Fatigue Syndrome also known as M.E or maybe both of the conditions, I got really upset because I couldn't cope with another diagnosis so he left it and not long after he left the practice to work elsewhere. Since that appointment the symptoms I was experiencing have gotten worse and exacerbated and recently I spoke to my GP about things and she decided to do some bloods which came back abnormal, she referred me to the hospital and I had that appointment in early October.
Unfortunately at the appointment my worst fears were confirmed and I do have Fibromyalgia, I was really good before going and didn't google it as I know it can often be a bad thing so I went with an open mind. The doctor I saw used an American scoring system he said and he said there were 2 sets of scores and 1 of them I should score 7 or below and the other 1 I should score 5 or below and I scored 19 and 12, I really don't do things by halves do I? The doctor spoke to me a little about what he wanted to do next and he said he didn't want to throw more medication at me but I will need to up one of the meds I take now and he will add another one in at a later date, he is also referring me to the pain management clinic which did have a fancy name but I can't think of it now, and he is referring me for counselling to try and help me deal with everything. I also had numerous blood tests done and he mentioned x rays to rule something else out but then didn't do them, I'm not sure why.
I didn't get the news I was hoping for and got extremely upset, Simon was with me and was as always very supportive, it was horrible. So now I have a follow up appointment in November and I think he might speak more about what happens next at that appointment, I got my blood results back that were taken at the appointment and some things were raised which he is going to discuss at the November appointment but my B12 was extremely low in fact it was in my boots!! So he wrote to my GP asking them to start treatment as soon as possible for that, so this week I have started 3 monthly injections of B12.
So for now that is where I'm up to right now, I have Fibromyalgia almost going off scale on the doctors scoring system, he said I couldn't have scored any higher, honestly I really am the limit aren't I? My bloods still aren't normal, I need to up one of my regular medications and will be starting something new I am assuming maybe the pain clinic will deal with that? Who knows, it's all a bit up in the air but I promised to come back and let you know how I got on so as promised this is it. But all that combined with my "usual" health problems is a lot to cope with, I'm not a "why me" kind of person but I have to admit it is all getting me down and I'm finding things hard at the moment.
If you would like to know how my next appointment goes please let me know, I would also like to say a huge thank you to everyone who has tweeted me, emailed me, commented on Instagram and Facebook thank you so very much for all your kind words and for "mamma sitting" me via cyberspace it means a lot to me, and to all my friends and family I honestly don't know where I'd be without you all, so to every single one of you, thank you so much your kindness means the world to me ♥︎
Thank you for reading, much love as always