Life Lately - A Health And Family UpdateMonday, May 16, 2016
Image taken from Google Images
Today's post is an update post, I haven't done one of these for a while and thought it was time I did. I chose the image above after seeing it online, it really struck a chord with me. It is actually taken from a Dementia awareness campaign but the image really hit me, I know I don't have Dementia, I do get terribly confused and forgetful but thankfully it isn't Dementia, but I feel like the lady in the photograph every day, I used to work as a nurse and unfortunately can no longer do this because of poor health, I have a few different medical conditions, some I have had for a few years and some that are a more recent diagnosis but I am no longer the same person I was and it is sole destroying. This is by no means a "poor me" post, and I am not searching sympathy, that's not who I am, but that photograph had an effect on me and I thought since this was an update I'd share it with you.
One of my conditions is degenerative and is getting worse all the time, and at a rate which worries me, I need constant care and can not be left alone, I won't go into details because it is A, embarrassing for me and B, I like to keep things private. But my pain has been very bad recently and my GP has confirmed that this is an indication that my medical condition concerning my adhesions has worsened, I know my condition is degenerative and this will happen and more regularly the more time goes on, but it doesn't make it any easier to take in. This is not the life I imagined, some of the side effects of my illness are excruciatingly painful and extremely embarrassing for me and have a huge impact on my life and mental health.
The next thing I want to speak about is my blog, I am very lucky to have a lot of help to be able to put my blog out there, I speak about this more in my "About Me" section of my blog if you're interested. Even though I have a lot of help, the last 6 months have been hard, we have had a lot of awful things happen in our family, I may do a post about this soon, I'm not sure about that yet but watch this space. I am going to change my blogging schedule to 3 times per week, I have so much help from my family and feel like such a burden on them that the help they give me with my blog feels a step too much, they say it isn't and it's fine and it's only 10 minutes here and there and they don't mind at all but I can't help the way I feel. So I am working on a different posting schedule and will let you know asap what it is, but if you don't see me for a few days, you'll know why.
Next up, if you've followed my other updates you may know one of my doctors is concerned that I may also have Crohns disease, I was referred to the hospital for this but unfortunately the hospital they referred me to was too far away and the journey alone almost killed me, I spoke to the consultant there and he has now written to my GP to ask if I can see a consultant at my local hospital, I also need to have some bloods done. I was also referred to the persistent pain clinic by the doctor who diagnosed my Fibromyalgia last October, I had an assessment with the persistent pain clinic in December and in February started to see a Psychiatrist, I suffer from depression and anxiety and the pain clinic wanted me to see a Psychiatrist first, I have seen her a couple of times now and will continue to see her, I was told I will see other people from the persistent pain clinic but so far have just seen the Psychiatrist so I'm not sure what else will happen with those other appointments yet.
I have also had a medication change recently, this is to try and help with my pain, I haven't yet noticed a difference in my pain but it is early days, so I am hoping things change and I get a little more relief even if it's slight.
I think that is everything with my health for the moment, news on everyone else - Lissy has finished university for the summer, she finished in March which is madness, £9,000 for less than 6 months! But it's nice for me as she is here all the time now, she is here a lot anyway even when she is in uni but now she's here all the time which is lovely. Cole is still enjoying her job, she works hard but it's nice to spend her days off with her too each week. Simon is enjoying his job, he changed nurseries in January, he is still only 5 minutes down the road which is good and he's much happier at the new place.
Since so many people have asked I can't not include Tinkerbell our bunny, she is doing ok but she isn't great, she had major surgery on 29th March and was recovering really well, she was like a new bunny bless her but a couple of weeks ago she needed further surgery, it went well and she was doing well but then picked up an infection, she is now on some more antibiotics which are unfortunately only available in tablet form, the vet told us to crush them up and put them in a little Ribena and syringe feed it to her, this is clearly easier said than done and watching Simon and Lissy wrestle with a little bunny each evening is rather amusing as she hides her face when they go near her with the syringe, she's so cute, she is also on pain killers twice a day so fingers crossed she picks up soon. She's not doing bad for an old girl, she was 9 in March and lost her sister in November so she's doing so well bless her, thank you for all your messages, emails, tweets and Instagram comments regarding Tinkerbell, we all really appreciate it.
So that's my little update, as I said I will be back with a new schedule soon, I am thinking 3 times a week, maybe 2, what do you think? If you're a blogger reading this, how many times a week do you post and when? Please let me know in the comments, it will be a huge help to me.
Thank you for reading, much love as always